Nag Entry!

Aug. 5th, 2009 07:36 pm
sorcyress: Drawing of me as a pirate, standing in front of the Boston Citgo sign (Default)
[personal profile] sorcyress
My mother has Multiple Sclerosis.

If you don't know what that is, it's a form of brainfuckery that affects the brain and spine, and can therefore manifest in all sorts of entertaining symptoms. Like not being able to see out of one eye, or severe double vision. Like dragging one foot and falling down a lot when you get overheated. Like getting overheated *really* easily, especially in summer, or when you do any physical labor ever, and needing to sleep a lot.

It, to put it in a single word, sucks.

In mom's case, it *also* means giving herself a shot of nice fun meds, to try and keep from relapsing. This is good, because if she does relapse, she gets to have a nice joyous dose of steroids. Steroids do not have awesome side effects. So, a nice fun injection. Every. Single. Day.

That also, to put it in a single word, sucks.

"But Sor! You are so awesome that your mother must be even more awesome! I don't want her to have to suffer! How can I help?"

Well, I'm glad you asked me that. See, I have this awesome button. I wear it at conventions, mostly, but every once in a while, I wear it about the world. We're just gonna pretend I'm wearing it right here and now on the internet.

It's a bright orange (of course!) button that says "Give Me A Dollar, Ask Me Why!"

The why is above. It's a fundraising tactic, the goal of which is to raise money for the MS society, so they can hopefully find a cure. My button feeds into Team Greykell, who is less than two months away from the challenge walk they're gonna do at the start of October. Every single walker on the team needs to earn fifteen hundred dollars. That's the easy part. After they've raised that money, they're gonna go walk fifty miles1.

((And my mother, after she has walked those fifty miles, is gonna cross the finish line and turn some cartwheels. I. Shit. You. Not. My mother is not merely awesome, she's crunchy.))

If you've got a spare dollar or twenty, go drop it in the donation box of one of our walkers --Brett Abbott, Stacey Abbott, John Buckley, Daniel Delaney, Greykell Dutton, Patty Hill, Russ Ives, John Kennedy, or Christopher Osborn.

"But Sor, you know me! I'm a starving college student/artist/lighting designer/soapmaker/mad scientist/teacher/actor. I don't even have a spare *quarter* to give the team! But I still really really want to help!"

Well, if you're in Maryland, that's easy --Join Team Greykell. Take that weekend, and sign up on the website and volunteer. On the day you're volunteering, go out to wherever the rest stop is being held, wearing your piratical best, and show the MS society just why Commodore Greykell's pirate crew is the best in the land. It's fun --no, really, I've done it a whole heap now-- and it makes you feel all warm and fuzzy inside.




So, for ease of you guys giving us money:

Give Me A Dollar!

Because MS sucks.




~Sor
MOOP!

1: Okay, technically, the Challenge Walk is 50 kilometers --only about 30 miles. They changed it last year --fifty was too long or something. Which is why Team Greykell hosts a "training" walk the day before the actual challenge, where those who want to can go ahead and walk the extra eighteen or twenty miles.

on 2009-08-06 03:31 am (UTC)
Posted by [identity profile] macaroniandtuna.livejournal.com
a form of brainfuckery

I really like this term.

on 2009-08-06 05:06 am (UTC)
Posted by [identity profile] lunaticvermin.livejournal.com
I have a close family friend who is afflicted by MS; it's a fucking horrible disease.

Good to see you're out there fighting it.

Thoughts and prayers with you and your mom.

on 2009-08-06 09:10 am (UTC)
Posted by [identity profile] harena.livejournal.com
. o O (first started writing this entry when Along Came a Thunderstorm & sat down beside me, er, i mean, the power went out.. so, Take Two!)

...starving soapmaker AND knitter, but i shall see what i can do ♥ because MS sucks.

on 2009-08-06 05:20 pm (UTC)
Posted by [identity profile] katydidagain.livejournal.com
The yarn addiction can wreak havoc with one's income. :-) (I've done soap once too. It was fun but I'm still wondering if it's worth it if I'm not making it for sale.)

on 2009-08-07 01:32 am (UTC)
Posted by [identity profile] harena.livejournal.com
Ain't it the truth? (Says the yarn ferret what just "invested in" about 7lbs of cotton yarn for dishcloths & whatnot >.>) But i justify it by giving away 95% of the stuff i make, so i feel it's good karma as well as therapy (loooove your icon :D)

i started making soap years ago because of immune system issues and along the way fell so in love with the process which results in soap that's all natural-like and makes my skin soo softy that i don't really care if it's cost effective; it's worth it to me! Plus, i go & give extras away to people too so they'll like me ;) ... and one day hope to sell some here & there in my Etsy store too ^_^

on 2009-08-07 01:38 am (UTC)
Posted by [identity profile] harena.livejournal.com
Oh & sorry about the Babble, i wanted to say so in the previous comment but Elljay randomly decided it was too long without telling me so, and yes i do rather go on & on & on until foaming at the mouth & falling over back'ards when given the chance ;D

on 2009-08-07 04:42 am (UTC)
Posted by [identity profile] katydidagain.livejournal.com
Are you on Ravelry? I'm katydidagain there too.

on 2009-08-07 10:02 am (UTC)
Posted by [identity profile] harena.livejournal.com
i am! Harena there too ^_^

on 2009-08-06 05:22 pm (UTC)
Posted by [identity profile] katydidagain.livejournal.com
I gave what I could, which wasn't much, but wanted to help. Especially since I know quite a few peeps with MS, not just your mom.

Profile

sorcyress: Drawing of me as a pirate, standing in front of the Boston Citgo sign (Default)
Katarina Whimsy

June 2025

S M T W T F S
1 234567
891011121314
15161718192021
22232425262728
2930     

Most Popular Tags

Style Credit

Expand Cut Tags

No cut tags
Page generated Jun. 15th, 2025 01:06 am
Powered by Dreamwidth Studios
OSZAR »